Garden made for girl with disability 'unbelievable'
BBCThe family of a girl who was unable to use her garden due to a rare condition have said they are "so grateful" to a team of workers who turned it into a fun and usable space.
Ada, nine, from Swindon, has a form of leukodystrophy - a group of rare neurological disorders that disrupt nerve signals from the brain. When she was born, Ada was one of only 10 people in the world to be diagnosed with her particular type.
The condition does not have an official name, so is referred to as SUPV3L1. Her dad Chris has said the fact it is so unknown means "we live for the now because we don't know what the future holds".
The new garden was revealed to Ada and her family on Friday.
The brief for the team creating the garden was that Ada loves water play, sensory items, and to watch her twin brother Alfred play football.
Mum Loran said the garden was previously "not really wheelchair friendly and Ada was a bit of a spectator".
"So the idea was to try to make a disability access garden all the way around but make it functional for the whole family while keeping Ada at the centre of that," said Nathan Wilson, who coordinated the project.
The work was done free of charge, with national suppliers and local companies donating materials and time.
"We're taking a three-week project for the value of £35,000 and… completing it in four days," said Wilson.
"So the pressure's on before we even put the first spade to the ground."
An additional surprise for the family was finding out that they were going to Disney and Ada was being given a specialist wheelchair, thanks to donations.
"I just don't think there's enough words, is there, to thank people for giving up their time. Honestly, the weight that this is lifting off our shoulders is unbelievable," said Loran.
Players from the family's favourite football team, Swindon Town, also surprised the family in joining them for the big garden unveiling.
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