Rare diseases

Rachel Hughes talks about the condition her son has, which affects about one in 14,000 children.

Darren Ashton-Lake lives with Friedreich's Ataxia and wants access to a drug to slow its progress.

Charity says everything, including pictures drawn by children who have died, was lost to the fire.

Families affected by a rare inherited disease say they have had to "scramble" for information.

Juno's mother Gracie, 37, was also diagnosed with cancer during "tough year" for the family.

Idrees has a condition that affects his lung capacity, meaning he can easily get out of breath.