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Episode details

Sounds,12 Nov 2024,48 mins

My daughter died of ME. I had to fight the NHS for answers

The Story

Available for over a year

When Sean O’Neill’s daughter Maeve died aged 27 from malnutrition caused by severe ME - myalgic encephalomyelitis - he faced years of waiting for an inquest to find out why the system failed her. That inquest has just ended, but will its ground-breaking conclusion change things for the hundreds of thousands of ME sufferers in the UK? Details of organisations offering support for carers of children with life-limiting condition are available at bbc.co.uk/actionline. Guest: Sean O’Neill, Maeve Boothby O’Neill’s father and Senior Writer, The Times. Host: Manveen Rana. This podcast has been acquired by the BBC. It is not complied by BBC Editorial Standards but covered by the Ofcom Broadcasting Code.

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